1 Mouth + 2 Ears = What are you trying to say?

Ears ListeningRemember the old saying:   We have 2 ears but only 1 mouth?

(So we can hear twice as much as we speak, right?)

“NeuroTribes” (by Steve Silberman)  in the review at http://www.wired.com/2015/08/neurotribes-with-steve-silberman/

would say that when our kids with speech delays show self-harming:

Maybe it is frustration.  (Please, tell me why?)

Maybe our 1 mouth needs to zip it & our 2 ears REALLY listen to whatever is being communicated, elegantly or not.

Neuro-diversity (as an increasingly appreciated set of skills) + Intrinsic Motivation = Hope of the employment open road ahead for learning differences.

So when we pray for expressive speech, maybe our answers are in a new tongue—-coming from one not as agile as others might be.

May I listen better today.

Peace be with us,

Gayle

 

 

“It is Wrong”

Over the summer, John has had some practice being around kids who ridiculed his speech.

Not easy for Mom to step back, and teach him how to self-advocate.   2015-08-19 13.11.48-1

It is far easier to hover and try to shield him from the hurt of others.   But then I fail to give him tools for the next time.

Because the next time will come.  Won’t it?

So, we have these little signs in the home.  We practice saying in a strong voice this straightforward sentence:  “It is wrong to hurt other people”.  Practice helps John with a quicker reaction of what to do.

John can stand up for himself appropriately (kinda) to family.   Easier for John to say this to people he loves and is comfortable with than to other kids.

The unknown is more sensory stressful.    So he turns away and avoids.   He clutches (imperfect auditory processing and flow of receptive speech to expressive speech), and then knows he can’t keep up in said words.

This has happened twice that I know of on playgrounds, and twice someone has stuck up for him.

It will happen again.   Will there always be a friend to fight his war for him?

When this happens around me, I always try to help kids to understand what it feels like “when their tongues don’t work”.   I tell them to grab their tongues (I grab my own tongue), and then try to talk.   They get it.

And we extend the teachable moment by laughing and trying to say sentences together.

StopBullying.govAlso, a thank you, The Forsberg Law Firm, P.C., for sharing this 4-page Bullying Tip Sheet (more info at StopBullying.gov)

Best,

Gayle

It’s All in the Wanting

IMG_5323It must really be something John wants, to tolerate this.   And he does want it.

First meeting, 2nd year, 3rd grade boys, Cub Scouts.

Fully participated in all the team games.

What must that battle be like in his head:  to have joy override sensory defensiveness, building neural pathways to make it increasingly OK?

This stuff stayed on that face all the way home in the car, and up the stairs to bed after playing after he got home.

No facial claw marks proving, “OK, I endured it all and now I want this junk off!”

None of that in the 20-minute care ride home plus home time.

So, never give up on stretching our children past the comfort zones.

New neural pathways are the trophies of interventions.

And let’s not forget intrinsic motivation, right?

What does your child WANT to do?

I ask John all the time.   It’s a good conversation, no matter how the expressive speech goes.

(I also share this shortcut with you—his badges are stapled on.    And they haven’t fallen off yet.)

Best,

Gayle

 

 

Today, I Yelled Back

Lion RoarMore like a roar, actually.  A bellowing lion in a very small space.

No words, just mirroring back (and magnifying) all that boy-lioncub yelling in the wee-little, closed-in bathroom.  (We call it the (time-out)  “Loud Room”, the “Angry Room”.)

And then I heard a mom’s voice saying, “John, sometimes you make Mommy so sad I want to cry and cry and cry all day.”

So then, we decided to try again.  Start over.   Do better next time.

It is called natural consequences, a part of interventions (from the Latininterventiō”), a “systematic process of assessment and planning employed to re-mediate or prevent a social, educational, or developmental problem: early intervention for at-risk toddlers.” (Wikipedia)

You see, no other tool was working.  None of the redirects were working.  None of my “best laid plans of mice and men”.

When nothing else works, it’s sometimes “an eye for an eye”—to better understand the future social consequences of a loud, lousy decision.

He understood.   He made better choices.

It probably won’t last all day.   But each time, the understanding of the consequence lasts longer.

No other choice, it seems, than reciprocity every once in a while. (“that is what it feels like”.)

Randomly, reflecting the learning of B.F. Skinner’s chickens pecking at the corn.

“Tough Love” interventions build the respect John needs to function within society.

No time to lose.  He gets older and bigger by the day.

Peace be with us,

Gayle

(P.S.  Clip art available to anyone via PowerPoint.  Thank you.  Simba, roar on !)

“They Will Be Expecting That” (Buzz Lightyear)

The other day, I gave two 8-year-old boys a reprieve from our daily morning TouchMath because ……   (I had a good reason).

That omission of expected summer academic routine threw everything into chaos  (exactly the opposite of when kids complain about something, begging to escape it.)

Well, I can promise you I only made that mistake once.   The next morning, we were right back to “nothing fun happens until we get our TouchMath done”.

They had come to expect it and took comfort from the ritual.UglyWorkSmileyFace

I learned that John wants to (sometimes) do good work.

He had just done “ugly” work and I said so. The smiley face on the paper wasn’t smiling.

He then begged to do another TouchMath problem to earn a happy face.  Gave me NO lip—-did it with a smile.    With a huge grin on his face, he received the expected  happy face.UglyNot SmileyFace

So, a secret you already knew: Kids (with learning differences OR NOT) like structure.  Tough, direct, loving structure.

Nice leverage to take advantage of, don’t you think?

 

Best,

Gayle

In Over My Head

“Please mute me.  I am drowning . . . .”

We therapy moms who dream of sentences get in a certain method of talking…..saying things to reinforce learning, first in one way, then another.  You could easily call it “too many words”.

(Two adults have chided me for this over-informing, so I try to be better self-aware.)

For 2 weeks, I added another 8-year-old boy (my step-grandson who is like a same-age cousin to my boy), a very verbal little charmer.   (So, I have one 8-year-old who talks like a 2-year-old, and the other an 8-year-old teenager with attitude.)

There came a hour when I was overwhelmed with the 2 boys yakking in opposite directions.   It took me a few minutes to realize I didn’t have to respond to “everything”.

I went non-verbal myself for a while.

I sort-of directed traffic with hand motions, facial expressions, and body language.

It was utterly bliss.  I stopped trying to keep up.

Not a long-term child-raising strategy.  But an oasis of calm when I needed it.

You deserve the time of peace to think.

Gayle

 

Sneaking Up On It

Love movies, unless we hate them.

My 8-year-old son John has never made it through a movie at the theater.    The theater is always too loud, too scary, too everything-too-much.

But then Inside Out showed up:  Emotions with cute little voices, faces, behaviors and a story to tell.   Gotta try, right?

So, Cousin/Nephew Adam got recruited to help.   Here are some photos of the elaborate plan to get John through the closing credits.

We rehearsed at home, got to the theater early, and used every trick Mom could think of. Including playing in the dark before anyone else got there and using headphones for sensory boundaries.

Try this.

We made it.  John has a new experience, a new neural pathway network to keep deepening.  Something to do next time with friends.

It probably wouldn’t have worked without a buddy.  This is the magic of peer-modeling.   When kids help kids.  There is nothing better.

Matching Emotions

 

Bribing a Child

For two weeks, we have another little 8-year old boy in the house.  Adam is my son John’s nephew, my step-grandson.  (This technically makes me a grandma, with Nephew Adam 2 days older than Uncle John.)  

Adam has no learning differences.   And, Adam loves junk food.   So I have bribed him that if Adam can teach my son John to get his you-know-what into the you-know-where, I will let Adam eat cookies all day long, for one whole day.  Adam is now fully engaged in John’s #2 toileting goals.

And I am also bribing the 2 boys each morning to get through their practice of TouchMath together.  Nothing fun is going to happen until then.  (Technically, that’s less bribery and more tough love parenting.)

I also have a pending deal with Adam involving getting John to actually chew gum.AdamJohnTouchMath

You might want to try some version of leveraged bribery.

I am using it shamelessly.

Best,

Gayle

 

Can I Buy Some Attention, Please?

2015-07-22 17.11.36Ever wish you could just buy something, as a way out of a problem?

I wish I could buy parental attention, so that I could have a ready supply for my son, for all those moments when I just need to do something else.

John hates math, and he is really hating TouchMath every day.   Every day, I make a list like this, on old-fashioned paper (Thanks, Rosemary Slade), and just point.   Like the Ghost of Christmas Past.  And I have added, “say the words or we start over”.

I was frustrated, drowning in re-directing, my son John playing me like a harp.   Stalling.  Driving me mad.

So Mom got smart.   I started taking him with me.   Wherever I needed to go.   To the kitchen, to the bathroom, to the office.  I had already learned I couldn’t walk away (because he cheats), and I couldn’t hurry him up (because he stalls).  My attention to his TouchMath seems to be ESSENTIAL.

That is why I want to buy attention.  A big fat box of it, that I can throw at the problem and walk away.

But that isn’t how John is going to learn.  Learn TouchMath, learn ANYTHING.

So, I make my attention portable.   I keep aware of the sounds, so I know which chapter he is in by the words I hear.   My eyes may flit away temporarily as my hands do my chores.  But Mom keeps her cool—-because the stall is now John wasting his time.  NOT MINE.

The TouchMath apps follow quite well the theories of their (free) training, but there is NO substitute for paying attention and staying in the moment with his learning.

Today, finally, John took delight in marking off each chapter done, after he showed me the chapter summary screen (so watch for that). 

I have learned to be aware of small moments of new learning (evidence that a learning hole has been back-filled), and never interfere of that demonstration.   But, oh my, I soak up the memory and dance in my heart for every small achievement, whatever he didn’t do before, and is now doing.

So, fellow parents, take heart that your vigilance and persistence of giving attention is vital, precious, necessary, and your own unique reward.

We really can’t buy attention, right?

We can only give it.

Best,

Gayle

 

 

Peace Within Your Own Skin?

Today I spent a few quiet hours with my 8-year old son in the water, marveling at how comfortable and playful he was.  His sense of peace, of pace, of not needing, brought tranquility to this churning mom-heart.  That so-busy-with-interventions heart, that is supposed to be balanced between two opposite worlds:  One half doing everything I can to help him and the other half accepting him just as he is, in the moment.John Floating

I fall short often of that second nirvana—that half of my heart at peace with him as he is in his own skin, becoming John.

He is not always this calm, quiet, full of simple joy.  Is it  because I am chasing something I shouldn’t?

How do we teach our struggling children to be at peace within themselves?  To find and hold that inner harmony, to be at equilibrium enough when that social snub comes.  To not grieve for that party invitation undelivered?  To not need, to not be needy?

Peaceful in their own skin.Slide1Heart

For John, it would, of course, start with me.

What kind of example do I provide?   What did I miss?

Sometimes I am Mary when I should be Martha.

Sometimes, the opposite.

“Don’t worry that children never listen to you; worry that they are always watching you.”
― Robert Fulghum (“Everything I Needed to Know, I Learned in Kindergarten”)

Peace be with us,

Gayle

 

 

“I Think I Will Try That …..”

Says John.   And then he does.  2015-06-10 14.16.06

When he is ready.   Not when Mom nags, hovers, or cajoles him.

When he was ready to swing out, Tarzan-style, on a long rope over the deep pool at SplashTown.   Letting go.  8 times.

When he was ready to try the archery range at Scout Camp.  Or over to the basketball hoop, with no one he knew.

When he was ready to try the electric hair clippers.

When he was ready to try no more pullups at night.

When he was ready to try . . . . . oh dear angels . . . . actually pooping in the toilet? (am I dreaming?)

The magic of self-directed intrinsic motivation—when he says he wants to.

So, with your learning ones, try saying,

“Do you want to try ……?”2015-06-19 21.10.412015-06-08 17.56.01

And then we back off.  We really have no control.

Best,

Gayle

That Will Cost You …..

It is one thing to recite what a quarter, dime, nickel are worth.  Like a robot.

It’s something else to be excited when you pick up a stray quarter because you know what it will do for you.

It has been a struggle to teach why coins are worthy when all our transactions are efficient credit card ones and Mom is mostly always in a hurry.  The teachable moments on coins pass by.   2015-06-24 15.54.10 2015-06-24 15.49.31

The great news is that John loves to mess (you know it is really “stim”, right? as in “perseveration”, to do something over and over) with Rosemary’s clock timer during OT sessions.  (Rosemary Slade, O.T.R.)    And consistency with home chores is way past due.   John now has a motivation to do chores because he wants to buy a stim!  (and other things, but never underestimate the clever leverage of a stim!)

Rosemary and I brainstormed how to extend the teachable moments involving time, coins, counting, self-control, and choosing personal rewards.   We list the things he is working for (swimming, movie, computer, Mom’s phone), and when he makes a bad choice, he has to decide which one gets eliminated.   This takes some thought, and we can see him making the calculations.  He has to pay fines for humming (another stim) and other bad choices.  He also gets to buy more play with the phone timer.

John is blessed that Rosemary is willing to add this extra “transaction” complexity, including making change, to our OT sessions.

(And they both seem to love it—I hear a lot of laughter and negotiation going on.)

So, with your children—use their stims creatively.   It’s all fair in love and teachable moments.

More Rope!

Risk is Learning

2015-06-17 09.24.27 There was a day I was afraid to let go of his hand.  The possible consequences ignited panic.

Since that time, John has earned a long, nearly-endless rope, inch by inch, by his many good choices. (You know he also made a lot of lousy choices along that path, right?)

I have had to stand my ground, make him come back to me as he tests my resolve with his mischievous faux escapes.  (He thought he was hilarious and I was seeing possible disaster.)

Eventually, rope earns more rope.

And now I test his intrinsic motivation as we pull into the parking lot of his beloved i9 basketball camp.

Will he stay in the car until I park so he can turn off the car (new quasi stim) or grasp the freedom to enter solo as I stop at the curb?

All that rope to do the right, “big boy” thing that he sees other children doing—to go inside the building on his own, and tell them he is here.

Or to choose fear, hesitation, the ignition button stim?

One decision path leads to his future, your child’s future, in this neuro-typical world.  The one neuro-typical world we all want so desperately to share with our kids.

Our kids who need to have opportunity to earn more rope.

As John says, “practice brave”.  Stand your ground.

Peace be with us,

Gayle

Use Those Kids!

2015-06-08 16.47.24Other kids can get John to do things.  Important, powerful, stretching, social, scary things.  So I use that.

What you see here is a hot, scared, hesitant, sensory-averse kid (yellow shirt), doing something for the first time.  Out in the neuro-typical world, alongside other faster kids.  Because his team-mates said, “Come on, John.  Come with us.”

Sometimes John would say, “I think I will try that” to me, like it was his idea.   Sometimes, wordlessly.

So, find some good, kind kids with good, kind parents.  Explain, in short form.  (I tell them that John is scared, and that his tongue doesn’t work as fast as theirs.  I stick out my tongue, grab it with my fingers, and try to talk.   I ask them to do the same, and they get a real fast idea what expressive speech delay is.  Not scientifically accurate, but, hey…..)

And I then ask the kids to get John to come with them.

Some day, I will have to deal with stranger danger, but not today.  Today is about the archery range at scout camp.

I hope this works for you.   It is golden in John’s world.

Love those other kids.

“It is Fun to Have Fun, But You Have to Know How” (Dr. Seuss)

Most kids seek the spotlight, right?   They yell, “Hey, Mom, look at me!”

But what if not?   If they do not seek attention, shy away from other kids, do anything to escape?

This version of John (in the photo) is only recent.  It has taken years of work to get that expression of joy you see.   Years of work that you might be thinking isn’t so much worth it anymore for your child.

“The sun did not shine.  It was too wet to play.  So we sat in the house.   All that cold, cold, wet day.”

"Look at me!  Look at me!  Look at me now!  It is fun to have fun but you have to know how."

“Look at me! Look at me! Look at me now! It is fun to have fun but you have to know how.”

Nope—do not listen to that fish in the pot.   Do not “just sit, sit, sit, sit” !

Movement will always help our children.   Balancing, jumping, crossing mid-line, climbing, and all purposeful movement will build gross motor skills into fine motor skills.   It is a blessing of natural consequences that children learn physically, socially by purposeful movement.

And as our kids master physical movements (as when my son could finally launch a 2-footed jump), they will know they have done something worth “Look at me!”

These moments of small joy are worth the consistency and effort you make each day, every day.

Learning is for today.

On my good days, I live “in the moment” with my child.

You?

Why Would I Want My Child to Fail?

We love to protect our kids.  So, it is against everything we believe in, to back off and let them find themselves via failure.

I watch my son hang wistfully on the fringes of social play, watching stronger boys play ball.  I try to hide my fear that he will be rejected, left out.   I smile and watch the play as a spectator myself.   John sort of follows the pack, up and down the court.   Some days, he works up the courage to worm himself into the play.  Other days, it is strictly watching from the edges.

What matters is that day when he will be in the play because he wants it enough in all the little ways that have to come together to make something happen.

We wait for the magic of Self-Directed Learning (SDL), which leads to intrinsic motivation and readiness for independence.

Self-Directed Learning can only start when we fade our prompts, and back off.  Our kids have to fail, feeling loss and pain, to become motivated to use their grit.

They can surprise us with their abilities, and we must not underestimate their strengths.  We bleed while we wait and watch.  We want to rescue.

But John doesn’t learn anything when I rescue him.

Not quite in on the play

Not quite in on the play.  Today.

 

Our Kids Can Be Happy Because ….

IMG_2861So, what motivates your child?

When you aren’t looking over his shoulder, why does your child do what he does?

And are you glad about that choice?   Do you see intrinsic motivation?  This good-choice-inside-coming-out means your child is “in-the-flow”.

You know that feeling:  when you are doing something you love and time stands still.

Here is John at school happy and smiling because “he did a good job” (that sentence he created without prompts).

Would NOT have occurred mere months ago.  The markers would have been flying across the room instead.

So, sharing this with you I hope encourages you to be consistent in all you do for your child’s learning.  Continue to work with your team on finding what your child loves to do.  Dance joyously in your heart if they are motivated by and take pride in what they do.

Then use that shamelessly and wisely to help your children develop skills they can keep and use:  Achievement because it makes them happy inside.

And share with other parents, because stuff always changes.

As my neighbor Helene told me her mom always said, “It’s a wonderful life if you just don’t weaken.”

No one is stronger than our kids who hold up against learning differences.  We can help them find the joy in their motivation.

Serenity Now?

Tonight I cried, as I often do when I think about the sensory nightmare that my kid and each of our kids must be enduring through.    I was lucky to still be in the car, my best place to weep and grieve.

I hate that I have to be such a strict mom.   For I am.  I have been trained to be that.  It haunts me that his impulse-control choices will only have larger and larger consequences.

At the end of a 7-hour school day, my son pines to decompress like this.   I wait until he says he is ready to go.  It’s quiet freedom, bleeding off everything that accumulates.   I watch quietly, sharing in the pain and victory from afar.  He sometimes wants an audience to appreciate his new tricks.

So, honor your children when they try to show what they need at the end of an endurance.   How they find their serenity now.

They are our heroes, braver than we are.  And we think we are pretty brave ourselves.

Serenity Now

Best,

Gayle

 

 

 

 

 

 

 

 

 

 

Chance Encounters?

Gifts from showing vulnerability

Do you hide?  With your child’s learning differences?

Maybe you are missing “chance” (no such thing, I say) encounters with the heroism that abounds.

Remember “Desiderata“?          “……and everythere, life is full of heroism.”

 

Be brave,

Gayle

 

Why I Love (and get peace from) Platform University

As a mom of learning differences, I have learned to find an expert, get wise advice, and then implement.   Don’t argue, analyze or rationalize.   Do It.   My young son, currently with special-needs, has greatly benefited from this, and so has my peace of mind.

I heard about Michael Hyatt and found Platform University.   Very quickly, I felt great peace.   I love his simple, step-by-step, always-cheerful, multi-modal instructions.

In addition to a new site/blog/project, I also now have a stand up desk .   I even seriously considered sleeping while standing up.  Hope

Platform University’s team has the bugs already worked out. The forums are full of very wise people who freely share with no evidence of “what’s in it for me?”   I have started increasing my small stale platform, adding new pieces, and going deeper and wider.

For those of us who might feel like we are drowning, not knowing what to do—-now that is over because we get great Platform counsel on what to do.

Then we just do it.

Here is your link:  Platform University

Is Anyone Paying Attention?

Does your child pay attention to you?   Does he/she want you to see them?  As for me and my son, he now does.  He didn’t used to.   Watch his face tell his story in this little video from Cub Scouts.   (Also watch him twist his fingers to deal with the anxiety.)

 

I want to share with you interventions I have used, because some will work for you.

You want that “joint attention”, that shared experience.   Whatever experience you have, it doesn’t matter.  What is golden is that you share it,with someone who wants you to notice.

Best,

Gayle

 

Living with Learning Differences

cropped-Gayle-BW-Print-New1.jpg

Hello.   Glad you are here.   My name is Gayle Fisher.

Do you learn differently?   Does someone you know and care about learn differently?  If “yes”, then that’s a lot to talk about together.

My answer is “yes”.   It’s my son.   He’s 8 right now, getting older (and bigger) by the day.   So, like you, I really never stop thinking about learning differently.

I will share back and forth with you so that we can help those we love and care for.

So that we can find peace.

Glad you are here.

GettingSorted.com